I could give many reasons why my updates have been delayed such as the pandemic depression hit and finding the energy to type this up and research whatever the **** I have is just too draining. Or, I started a new/old job so I’ve been solely focused on that.
However, the reality is while all of those things are true, I honestly hit another rough patch while trying to get to the bottom of this issue. I was going through another “am I imagining this? Is this really something worth fighting the medical system for?” Today is a good day, so I am saying Yes, this is worth the fight and my energy.
To be fair, the only reason why I even have enough energy right now is that I’ve started a new medication: Adderall. I was on a baby dose before, but now my does is triple and I feel how I used too many years ago, awake and normal. Although, it took nearly 3 weeks for my insurance and psychiatrist to work together and agree that I shouldn’t have to pay out of pocket for this med.
I have to say though, I’ve discovered an upside to the medical system during this pandemic. Doctors in a large city near me are allowing virtual conversations with doctors, an option that wasn’t possible before. I would’ve had to take the day off of work, traveled two hours one way, and countless toll money to have a 15 min conversation. Now, I have a virtual conversation scheduled with a neurologist this week!
I had to put off seeing the sleep specialist due to starting a job, but that has been moved to two weeks from now. I’m sure both appointments will be spent convincing them I don’t have sleep apnea and there has to be another explanation, but I’d like to think that at least one of them will have to listen.
The sleep apnea symptoms include snoring, gasping for air during sleep, morning headache, etc. which normally a bed partner would notice, which mine has not. As he stated, he watches me sleep on occasion, and I have none of the signs. I’ve come across many people who have had it in the past and informed THEM that they have it, but no one has ever told me about any of these signs. Doctors and everyone else have said “you may not know you have it until someone tells you…” but trust me, I would know.
Sleep Apnea Info: https://www.mayoclinic.org/diseases-conditions/sleep-apnea/symptoms-causes/syc-20377631
My new/old job is a job I left years ago, but it pays well, I get to work from home, and I know the ins and outs of the job already. Without giving away too much detail, the job entails talking to people and collecting their medical history. This is fascinating to me because I listen to the different conditions, people’s stories, and every few days I hear of a new medical condition that I’ve never heard of before. I get to hear how doctors treat different conditions, and sometimes the ways they are diagnosed. I’m hoping this might lead me somewhere with this process. At the very least it pays the bills!
I took my dose a little late on Saturday because I slept in – or more like I couldn’t wake up after sleeping 14 hours – so I had some bad insomnia Saturday night. I decided it might be better to skip my Adderall dose on Sunday so I could get back to a regular sleep schedule. Of course, this was the same day I went to visit the in-laws. I gave my father-in-law, who has a fair amount of medical knowledge due to previously working in the healthcare field, a condensed version of everything in this blog, and the struggles with my medical experience. He made a couple of suggestions such as: bringing my S.O. with to the doctors’ appointments to vouch for me because doctors sometimes won’t listen simply because I am female.
Looking at the positive of being tired all day, it reminded me of what I was like before my current medication. Since I have been taking my new med, I keep thinking “this is working, I could just stay on this med“. Then, days when I’m off my med hit and I need an answer. I need to have an answer to what this is. It’s not knowing which is worse.
After my last post, it took me a while to try and get back on track. After a while, I determined that at the least I needed a new PCP since my current one didn’t seem to care, among other things. I got a recommendation for a new PCP from some friends and scheduled anContinue reading “New PCP, New Possibilities?”
It took 2 weeks to get my results back from the sleep clinic, but I got them. I do not have narcolepsy and my average sleep latency (how long it took me to fall asleep) was 13+ min so I do not fall within the idiopathic hypersomnia diagnostic criteria. What does this mean? Back toContinue reading “Excuse me while I scream and cry”
A few nights ago I officially had my sleep study and the results are pending. I should find out next week what the results are. Even though the nurse wasn’t supposed to tell me, because she liked me I guess, she told me I didn’t have sleep apnea (duh!). But it was nice to hearContinue reading “To Do: Sleep Study – DONE”
I relate well to this. I battled for two years, searching for answers for my pain. I have fatigue because…
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